Census of India-2011 to determine the correct number of Citizen with Disabilities

Dear friends,

So far the citizens with disability in India have been getting a raw deal in terms of budgetary allocation in the annual budgets as well as the five year plans. Despite 3% reservation mandate in the Persons with Disabilities Act-1995, in all Government schemes, the confusion had prevailed whether it is only of a particular ministry or a scheme or the overall budget of each ministry.

While the disability groups have been claiming later and also Govt. of India agreeing to it to a greater extent this year which manifest in the almost double allocation for Disability in the Ministry of Social Justice & Empowerment. Govt of India - which is seen as pro-disability move of the Congress Government, however, this alone is not sufficient because of the simple reason that the head count undertaken in Census 2001 was highly unreliable according to the activists. And the budget allocation still continues on the old 2.13% figure!

Later years we have seen conflicting reports on the head count from NSSO, World Bank Report in 2007 and WHO estimates as well as the "70 Million" claim of disability rights activists. The disability numbers from various other developing and developed nations indicates that there was some systemic error in the head count done in Census 2001.

Whatever may be the reason, but the end sufferer has been the common citizen with disability. The country could not plan for this uncounted segment and they continue to live in penury without any state support for many for the welfare and empowerment schemes are based on the old & unreliable estimates. Often there are situations of conflict within the sector to lay claim on the little amount budgeted & available for their empowerment. Therefore, this time around the Disability Sector doesn't want to leave any room for such blunders that happened ten years ago.

They have taken up this task which is well timed. The idea is to look at the systemic lacunae in the way research statistics are collected. Right Questionnaire being administered by right and trained people is a must to get any reliable statistics. The training gain significance when the country is as huge as India with 2.7 million people going door-to-door for data collection!

We hope the master trainers sensitized and trained on the data collection mechanism and the questionnaire suggested by the Disability Sector will set ball rolling towards a more disabled friendly Census in India in the coming year.

Regards

SC Vashishth

Here is the news item from IANS. Click here to read from source: 2011 census to probe how many are disabled

New Delhi, March 15 (IANS) If all goes well, the 2011 census will refine its questionnaire in a bid to determine how many to Indians really suffer from disability.

The 2001 census came up with a figure of 2.13 percent of the Indian population. This, experts say, is way off the mark.  And since government schemes are based on statistics, it is important to get the estimates right.

As a first step, the National Centre for Promotion of Employment for Disabled People (NCPEDP), an NGO, Monday convened a meeting with various stakeholders to frame questions to determine the size of the disabled population while conducting the census.

C. Chandramouli, the registrar general and census commissioner of India, said he would present the questions to the technical advisory committee for approval.

'Despite a sizeable disabled population, the 1991 census did not have any statistic on it. In 2001, after year-long consultations with NGOs, at the very last moment one question on disability was included in the census,' said Javed Abidi, the NCPEDP director.

But the 2.7 million primary school teachers conducting the census were not trained to handle the question. Nor did they have enough knowledge on disability. So the census showed that only 2.13 percent of the population suffered from disability, he added.

A UN study says 10 percent of all developing countries' population suffer from some disability. A later independent study by the NCPEDP showed that six-seven percent of the Indian population was disabled.

'This meant that while the government officially recognises 20-30 million disabled people, 50-60 million are invisible. This is serious, especially because all government schemes are based on statistics. Therefore, we have decided to help the census commission frame questions to help evaluate the correct population of the disabled,' Abidi said.

The questions, Abidi said, will be such that all categories of disability like autism will be included and not just visual and hearing disabilities. Also, members of the NCPEDP would have a special interactive session with 725 master trainers on the subject.

The master trainers will in turn train 54,000 trainers, who will train the 2.7 million people who will go door-to-door conducting the survey.

We need indepent commissioners for Disability and a minimum wage social security

Dear Friends,

I second the demand of United Voices for Disability Equality in Odisha with little additions.

What we require is an Independent Commissioner for disabilities, with a rank equal to secretary & be preferably from the disability sector! Also the amount of social secruity has to match with minimum wages for skilled workers looking at cost of living index in each state. The charity doles of 500, 700, 1500 do not help the person with disability live an independent life. We need to say clearly "Please stop playing politics here, we are a potential vote bank of 10.21 lakh and if we include our families, friends and wellwishers, this number could be four fold and can be devastating for the prospects of any political party in the ensuing elections!

regards
Here is the news report on demands of "United Voices for Disability Equality"

Hike in aid for the disabled

BHUBANESWAR: The number of persons with disabilities is 12.21 lakh. But Orissa is yet to have a full-time and independent disability commissioner .

Differently-abled persons under the aegis of United Voices for Disability Equality (UVDE) today demanded filling up of the post before the ensuing Assembly session for immediate redressal of the problems of people with disabilities (PWDs) .

The office of the commissioner should be outside the State Secretariat building with barrier-free access, they demanded saying currently the PWDs are facing many problems even to reach the official concerned .

It would be better if the commissioner can be selected from among the differently-abled persons or parents of the disabled children so that the actual problems of the PWDs can be solved immediately, they said .

The forum, after a day-long deliberations today decided to give a memorandum to the Chief Minister, minister concerned, Opposition members and all MLAs tomorrow. “If the Government fails to make an announcement before the Assembly session then we would hold a protest before the Assembly,’’ they said .

The UVDE, consisting of 11 organisations from 21 districts, also decided that they would be forced to go for an agitational path further if the Government would not pay any heed to their genuine demands during the session, they said adding in 18 states across the country disability commissioners are working independently according to the PWD Act passed by Parliament in 1995 .

They told mediapersons that even when a disability commissioner incharge takes the burden here, he/she cannot function independently as he/ she also looks after the programmes of other departments .

Some UVDE members even said that though the ruling BJD manifesto had been mentioning about appointment of a disability commissioner for the last three elections, no initiative is taken yet .

“Not only this is a betrayal, but politically it means a lot to all our 10.21 lakh member community,’’ they said alleging that by not appointing a disability commissioner the Government is violating the human rights of the differently-abled people, which are guaranteed under the PWD Act .

Not only the appointment of the official, but Orissa is still providing a monetary benefit of Rs 200 a month to differently-abled persons as assistance and it is far less than in other states .

While Goa is giving Rs 1,500 and Delhi and Uttar Pradesh Rs 900, Maharashtra and Kerala are providing Rs 700 a month .

On the other hand, while Andhra Pradesh, Chhattisgarh and Uttarakhand are giving Rs 600, newly-formed Jharkhand gives double the amount of what Orissa provides, they said .

“With 2.78 per cent of the State population, we always deserve a better deal,’’ they pointed out and urged the Government to acknowledge their rights first which are ensured by the Constitution .

Throwing out workers with visual disabilities enmasse may be a bad precedent!

Dear Friends,

Cases like this are surely a discouragement to the voluntary initiative of private sector and are in bad taste-  both for employers and employees with disabilities.

Its difficult to prove how it all started and whether it was due to conflict between Management and Union or really due to no work being done by workers. One thing is clear, if the workers have been working for five years, they can't be shunted out in this fashion.

The management on the other hand should seek the active involvement of disabled employees in providing reasonable accommdoation. I also see a larger role here of NGOs that work in employment areas to diffuse the crises to set good precedent!

regards

Subhash C Vashishth

Click here to read from source:   Suspended visually-challenged workers say firm’s move against law

-Nisha Nambiar

Pune: Approach disability commissioner; company says they were doing no work but will get pay till probe ends.

Twenty visually-challenged workers, who were suspended by a private firm in Chinchwad, have approached the Disability Commissioner complaining about violation of their rights under the Equal Opportunity Act 1995, which says disabled persons cannot be suspended.

Uma Precision Pvt Ltd had issued the suspension orders on Monday. The workers submitted their representation to the Commissioner on Tuesday. The matter will be heard on Friday.

Advocate Vaishali Sarin said that the employees have been working with Uma Precision since the last five to six years and the company cannot suspend them. “It is against the law,” she said. Sarin along with these workers will hold a sit-in protest at the company’s gates on Wednesday morning.

The firm has been into auto ancillary products for 30 years and has nearly 500 employees. It had employed the workers in its punching unit. They had been working since 2005. The workers, who are part of the MNS’s Maharashtra Navnirman Kamgar Union, had clashed with the firm’s officials earlier too.

The company officials said the workers were suspended and a probe was being conducted. Director of the firm’s Human Resources department Dilip Tilekar said the employees were not doing any work and were suspended for gross misconduct. “A committee would conduct the probe. There would be a hearing in the coming week. They would be given a chance for their say,” he said. However, these employees will continue to get their pay till the probe is completed and hearing of the case is conducted, he added.

Sarin, however, maintained that workers had been doing good work and many of them are the sole breadwinners of their families. “I am the sole breadwinner of the family. It would be very difficult to find another job soon,” said one of the suspended workers. Trainer Sunil Chordia alleged that the workers were not given adequate work and the company cannot complain about them sitting idle.

emergency medical aid now legally binding on Doctors & hospitals

Emergency medical aid now mandatory for hospitals

The legislation "makes it mandatory to provide, stabilise and treat emergency medical conditions for doctors, hospitals and medical establishments.

Published on 01/29/2010 - 09:50:24 AM

New Delhi: The cabinet approved path-breaking legislation making it mandatory for doctors, hospitals and other medical  establishments to treat victims of road accidents and other emergencies and not turn away patients on specious pleas, official sources said.

The legislation "makes it mandatory to provide, stabilise and treat emergency medical conditions", official sources said of The Clinical Establishments (Registration and Regulation) Bill, 2010, that the cabinet cleared at a meeting presided over by Prime Minister Manmohan Singh, reports IANS.

Once parliament passes the bill, doctors and hospitals will not be able to turn away victims of road accidents and other emergencies on the plea that these are "medico-legal cases" which they are not authorised to treat, the sources pointed out.

The Bill will apply to all clinical establishments, including those with a single doctor and without any beds, the sources added.

"The main purpose of the law is to provide a legislative framework for the registration and regulation of clinical establishments in the country and also to improve the quality of health services through the National Council for Standards by prescribing minimum standards of facilities and services which may be provided by them," Information and Broadcasting Minister Ambika Soni told reporters after the cabinet meeting.

"This would permit categorisation and classification of different clinical establishments depending on their geographical location as well as services offered. It will also initiate the process for the creation of a national registry of clinical establishments existing in the country," she added.

"The Bill will ensure elimination of fraudulent practices or taking patients for a ride," Soni said.

The Bill, which will apply to all systems of medicine, including allopathy and AYUSH, is likely to be tabled in the Budget Session of Parliament beginning February 22. It, however, doesn't apply to the Armed Forces Medical Service "since they have their own set patterns in place", the sources said.

Once approved by Parliament, the Bill will be initially applicable in Arunachal Pradesh, Himachal Pradesh, Mizoram, Sikkim and all the Union Territories.

"It is expected that other states would also adopt this legislation," Soni said.

It was pointed out that while some states, among them Maharashtra, Orissa, Manipur, Andhra Pradesh, Nagaland, Punjab and Delhi, had passed similar legislation, "there was much to be desired by way of implementation.

"Stake-holders also pointed to the need for national levels of standards and hence this bill," official sources said.

The Bill, which the cabinet initially approved in June 2007, was tabled in Parliament in August of that year and referred to the Standing Committee on Health. The committee made 60 recommendations, of which 36 have been incorporated in the Bill.

Leprosy cured/affected still begging for want of rehabilitation measures & non-acceptance of society

Give leprosy-affected a chance: Times of India


IANS, 31 January 2010, 03:05pm IST

"Maataji, Babuji, namastey, namastey!", he greets people brightly at the traffic light, a smile lighting up his creased face. Kondasamy is one 31st Jan, World Leprosy Day (Getty Images) among the hundred leprosy patients in Delhi.

If Kondasamy, in his 30s, has ever been pained by noticing people shrink away when he puts out his disfigured hand for alms, then he has chosen to hide it behind his ever cheerful veneer.

"Tum ko uparwala banaye rakhe (may the almighty bless you)," he says in humble thanksgiving to anyone who gingerly drops a coin into the aluminium can - taking great care to ensure they do not touch the utensil - dangling from his wrist.

Kondasamy, who belongs to Bangalore, says he is cured of the disease. "I am cured. I was cured 15 years ago," he says cheerfully.

Kondasamy begs for a living to feed his family - his wife, also a cured leprosy patient, and his two-year-old daughter, who does not have the disease. He stays at a Kusht Ashram (leprosy home) in south Delhi run by the government, where there are many others like him.

"Yes, we have doctors coming to check us and I take medicines," he says. His wife stays at home to look after the child. Like Kondasamy, some of the other inmates of the ashram go out to beg.

In India, the recorded cases of leprosy have fallen from 57.6 per 1,000 people in 1980-81 to less than one per 10,000 in December 2005, which is considered the level of elimination by the health ministry as short of total eradication.

One can spot leprosy patients outside major temples in the capital, including the Hanuman temple in Connaught Place and the Sai Baba temple in south Delhi's Lodhi Colony. They sit on wheelchairs, with their belongings - all stuffed into plastic packets hanging from the chair. The wheelchair is their home - come winter, summer or rain. For protection against inclement weather, they have a thick plastic sheet to cover themselves.

And on days when there is sufficient water, like when a pipe nearby has sprung a leak, one can see them squatting near the water source, soaping themselves and enjoying a bath, by the roadside.

Food is not a problem for them if they are positioned outside affluent temples. They often get to savour platterfuls of puri, halwa, aloo subzi - all distributed by the devout on special auspicious days - notably Tuesdays and Saturdays. On other days, they get enough alms to buy food.

Leprosy (also known as Hansen's disease) is caused by a bacillus, Mycobacterium leprae. According to the World Health Organisation, the bacillus multiplies very slowly and the incubation period of the disease is about five years. Symptoms can take as long as 20 years to appear. Leprosy is not highly infectious. It is transmitted via droplets, from the nose and mouth, during close and frequent contacts with untreated cases.

According to the International Federation of Anti-Leprosy Associations (ILEP), a federation of 15 non-governmental anti-leprosy organisations, based in London, India currently has about 64 percent of all the new leprosy cases in the world, followed by Brazil with about 17 percent, then Indonesia with about 7 percent. Other countries reporting more than 1,000 new cases in 2006 include: Angola, Bangladesh, China, The Democratic Republic of Congo, Madagascar, Myanmar, Nepal, Nigeria, The Philippines, Sri Lanka and Tanzania.

A cure for leprosy was identified in the form of Multi Drug Therapy (MDT) that came into wide use from 1982 following recommendations of WHO.

ILEP says: "Many of those cured of the disease will have to live with the consequences of leprosy. It is estimated that probably at least 3 million people are living with some permanent disability due to leprosy, although the exact figure is unknown."

In the national capital, MESH (Maximising Employment to Serve the Handicapped), an NGO working with 40 groups of disabled and leprosy affected people for their rehabilitation, trains them in different craft skills.

The leprosy affected or their children are trained in weaving, designing, woodcraft and toy-making. The end products - elegant bedspreads, table linen, cloth bags, stuffed toys and cards are sold at their outlet in Delhi and Hyderabad.

MESH held an exhibition and sale of handicrafts made by leprosy affected people at their south Delhi outlet Saturday, and also screened a documentary "Towards Dawn".