Ordinance Route to push Disability Bill 2014 is against the Constitution

Dear Colleagues,

If we believe the news making headlines in today's newspapers, that the Congress leadership is trying to push the flawed disability bill of 2014 through promulgation of an ordinance - a backdoor entry, this is a disturbing trend  and must be desisted.

Firstly, without repealing the existing Act of 1995 the government - which is days away from the Declaration of fresh Elections for 16th Lok Sabha- they can not enforce this ordinance to benefit people even if brought in haste like this. Keeping in mind that even today, there are some states that do not have full time Disability Commissioners, over 50% persons with disabilities do not have disability certificates as admitted by the Minister himself in the parliament- do those who are supporting this bill claiming to be representing disabilities not covered in the present Act believe that all institutions promised in the ordinance would be constituted within 6-7 months and start to function to give them relief....?

If they believe so... they are grossly mistaken. And then, this ordinance will die its natural death, if the next government doesn't favour it.  Conventionally, it is the next government that should decide the fate of such pending bills which couldn't be passed by the parliament. At least I am sure that the present dispensation is not going to come back.... for the voter is now more aware! 

I strongly feel that ideally since the bill has been referred to the standing committee, we should await a better consensus bill. An ordinance will create huge confusion and will work counter productive for the existing rights available under the Act of 1995.  If the pressing needs of the disabilities not covered under the existing act are so overpowering, then the only prudent option  available in such a scenario is to bring in an ordinance improving the existing Act of 1995 to add the disabilities and extend the benefit to those who remain unrepresented. The existing Act had held the forte for close to two decades and a strong case law has been developed which shouldn't be lost sight of.  

Meanwhile let the Standing Committee do its work in partnership with the disability sector and let them bring in a consensus bill through democratic means. Will the Congress listen to the viable option or do they just want RaGa to play super government to score some brownie points?

Here is the writeup by Dr. Dhanda in Indian Express

A policy of activism and restraint

February 24, 2014 11:38 pm

Amita Dhanda

Government should use the ordinance route, not to push the 2014 disabilities bill, but to make the 1995 act more inclusive.

In the realm of disability rights, the events of the last month have been controversial. The government obtained cabinet approval for the Rights of Persons with Disabilities Bill, 2014, which does not meet the standards prescribed under the UN Convention on the Rights of Persons with Disabilities (CRPD), as it reinforces popular stereotypes instead of challenging  them, and permits discrimination rather than prohibiting it.

It also moves backwards on questions of autonomy, choice and liberty. Due to these regressive features, segments of the disability sector have criticised the bill. The bill’s supporters pointed to its inclusion of 13 new impairments and the enhanced percentage of job reservation. Since the losses were outweighing the gains and many provisions required fixing, the chairperson of the Rajya Sabha referred the bill for consideration by a House committee — the most appropriate solution.

The dust had barely settled on this decision before another controversy engulfed the disability rights legislation. There are rumours that the government is planning to enact the bill as an ordinance. Two questions are being raised: one, can the government enact the bill through an ordinance after referring it to a House committee? And two, should the government take this route?

Under Article 123 of the Constitution, the president has the power to make law through ordinances, provided that first, both Houses are not in session and second, the president is satisfied that circumstances exist which render it necessary that immediate action should be taken. Insofar as the two Houses are not in session, the first condition is satisfied. However, the second condition is not met. The bill was sent to a House committee because it needed more work. It was only introduced in the House and sent to the committee, and no urgency to enact the bill was expressed or shown.

Any effort now to enact the bill as an ordinance, after it has been referred to the House committee, would, in light of the Supreme Court’s ruling in D.C. Wadhwa vs State of Bihar, be seen as a colourable exercise of power and a fraud on the Constitution. On a plain reading of the Constitution and by relying on judicial decisions, it can be stated that the president cannot enact the bill by promulgating an ordinance.

It is also important to ask whether the government should enact the bill by using an ordinance. While considering this question, we should appreciate that disability rights is not an unoccupied field. The Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995 already controls the area. If the new bill is promulgated as an ordinance, it cannot become operable unless the act of 1995 is repealed. The act of 1995 has empowered a series of individual bodies and authorities to implement the statute.

All these entities would become dysfunctional if it is repealed. But there would be no time to establish and render functional new authorities, because an ordinance can be operable for a maximum of seven and a half months without obtaining parliamentary approval. Going the ordinance route would not benefit the freshly included impairments, but would create an enforcement vacuum even for the disabilities already included in the 1995 act. Enacting the disabilities bill through the ordinance route would usher confusion and chaos, and could cause all disabilities to lose legislative protection.

With the bill referred to the House committee, the newly included disabilities are at a special disadvantage. Since 1999, when a committee set up to suggest amendments to the 1995 act highlighted the need for inclusion, the battle has been on to recognise excluded impairments. The disabilities included in the 1995 act await the passage of the new law while continuing to obtain the benefits and entitlements provided earlier. But the disabilities not so included get nothing.

It is important that all disabilities are similarly positioned so that they can work on the passage of a robust CRPD-consonant legislation. This is a situation of inequity which needs to be remedied. Since the two Houses are not in session and the enactment of the new law will necessarily take some time, the government should use its power under Article 123 to amend the 1995 act to include the new impairments that would have obtained inclusion if the new bill were passed. At the same time, the inadequacies of the new bill should be rectified by the House committee. By adopting this policy of activism and restraint, the government could do right by all sections of the disability community.

The writer is professor and head, Centre for Disability Studies, NALSAR, Hyderabad.

Source: Indian Express

Guidelines for Comments - Facilities for Govt. Employees with Disabilities for efficient performance of duties

Dear Colleagues,

Some of you would know that the Office of Chief Commissioner - Disabilities had organised a workshop titled "Consultative Workshop for framing draft guidelines for creation of non-disabling work environment for Government Employees with Disabilities to enable them to function smoothly in Government service."  on 28 May 2013 at IIC, Delhi. 

After the day long deliberations, wherein delegates from the disability sector, NGOs, government employees, national institutes etc.  participated. I had the opportunity to compile the draft on behalf of the CCPD office which was subsequently sent to the DoPT. Click here for a copy of the said draft hereinafter called CCPD's June 2013 Draft

Now, almost after 8 months, the DoPT has come out with the final version of the document titled "Guidelines for providing certain facilities in respect of persons with disabilities who are already employed in Govt. for efficient performance of their duties" dated 14th Feb 2014 which is also uploaded on their website inviting comments from Ministries/ Departments. Click here for a copy of the said DoPT draft dt 14 Feb 14

I can with reasonable credibility, having been a participant at the CCPD's Workshop on 28 May 2013, and having contributed and compiled the CCPD's draft can safely conclude today that the draft has been diluted to a great extent. Despite that, I believe notification of the guidelines is a good step and it will not only help integrating employees with disabilities at workplace in govt but also and offer guidance to private players. However, here is a brief evaluation of the guideline.

Good things that have been accepted in the DoPT draft:

1. Placing the employee with an experienced employee for at least a month on resuming responsibilities of a post - that will allow him to pick up required skills to perform the job and also explore the adaptations needed in individual cases.
2. Provision of assistive devices/ aids - good quality assistive devices, special chairs, software etc to improve the efficiency has been accepted in principle with a review every three years for upgraded versions. It requires the departments to provide for the cost of equipment or its reimbursement to the employee.
3. Special casual leave of 15 days per annum - mainly for inpatient treatment in CGHS.  I hope this is in addition to the existing sick leaves and all other leaves.
4. Every ministry/department to arrange training in "Disability Equality and Etiquette" for their liaison officers in consultation with CCPD. 

Some glaring issues that are visible on a cursory reading in the DoPT draft are:

1. At the outset, the document doesn't come across as a rights giving document, it looks more like a doles giving document to the employees with disabilities.
2. There are no budgetary provisions made nor there is any system created to evaluate or assess the needs of employees with disabilities. Hence the entire "amenities" are likely to be more subjective.
3. It is seeking comments from ministries and not from general public or associations of employees with disabilities.
4. It gives no legal sanctity to the disabled employee unions to discuss their issues as mandated by the UNCRPD.
5. When compared with the CCPD draft,  you will realise how 21 page draft has been reduced in to 4 pager policy. This has resulted in either things getting  left out or made so vague that it may be difficult to seek its implementation.
6. It misses out the reasonable accommodations needed for employees with disabilities to perform to the fullest.
7. Due to limited applicability, it is feared by some quarters that it may not help employees in Banks etc. though I feel these would be equally applicable to employees in scheduled banks as well as those working under Ministry of Finance. 
8. Also it is not indicated as a guiding document for the State governments who may have a job identification list for persons with disabilities different from the one notified by the Union of India. 
9. The DoPT has sought comments from the ministries and is likely to be finalised without any final involvement of the stakeholders..... which is against the basic theme of UNCRPD - "nothing about us without us". That is what the government had done even with the RPD Bill 2013 when it was quietly pushed in to parliament in utmost secrecy without involving the stakeholders.
10. In the Identification of jobs, there is inherent bias visible in the guidelines when  it says that each ministry ..... should identify the types of jobs which could be easily performed by them specially for group B, C & D...... Why should Group A be excluded? Do they think that disabled employees are not capable of holding Group A post or performing functions of Group A posts?

Conclusion

I am leaving it to you to compare the two drafts available on the links above, and see for yourself how can a well meaning document be turned into a weak policy document nurtured with a charity mindset!

Here is the coverage in The Hindu on the subject today:

Centre’s guidelines moot facilities for disabled government staff

18 Feb 2014, AARTI DHAR

Proposals include preferences in transfers, postings and accommodation, reimbursement for assistive devices and special casual leave

The Central government has come up with a set of draft guidelines on providing certain facilities to its employees with disabilities to help them perform their duties efficiently.

The guidelines, released on Monday, include proposals such as preferences in transfers, postings and accommodation, reimbursement for assistive devices and special casual leave. Additionally, all ministries and departments, subordinate offices, PSUs, government companies, and cantonment boards would also have to identify the type of jobs that such employees may easily perform.

As far as possible, persons with disabilities will be exempted from rotational transfer and will be allowed to continue in the same job where they would have achieved the desired performance. Preference in place of posting at the time of transfer or promotion may be given to the persons with disability.

The induction training — an essential component of an employee’s service requirement — of all employees should take place together. Job-specific post-recruitment and pre- promotion training programmes are required to be organised for persons with disabilities.

The guidelines instruct ministries and departments to provide or reimburse, within a specific time frame, the cost of special assistive devices in accordance with the prices fixed by them in consultation with various national institutes specialising in disability care.

Can bad law be good: Faizan Mustafa

Can bad law be good?

17 Feb 2014

The vision is to have a society where all categories  of  disabled  persons  are valued and respected as equal citizens and partners in the development and progress of  society and they are no longer looked upon either as burdens or  liabilities  or  targets  for  pity  and charity

FAIZAN  MUSTAFA

Why is NALSAR University of Law, the country’s best law school, opposing the Disability Bill introduced a few days back in the Rajya Sabha?  Can the latest amendments rectify the defects in the Bill? What can be done to help  persons with disability at this stage?  These are some of the questions which call for objective and critical analysis.

The 2006 United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)  makes the progressive and bold assertion that the disabled have the right to recognition as persons. They have full legal capacity on an equal basis with fellow human beings. Thus the Convention makes a fundamental shift from the  “incompetence model” of the disability law to the “universal capacity model”. The Convention challenges the irrational connection between impairment and incompetence.

The UNCRPD also guaranteed the right of participation and effective consultation to persons with disabilities. The Government of India implemented this obligation in letter and spirit when it launched the most extensive pre-legislative process, by first establishing a government-civil society committee to prepare a working draft with inputs from all relevant stakeholders, translating the draft into 14 languages and obtaining public opinion on it by travelling across the country.  This widely consulted Rights of Persons with Disabilities Bill was submitted to the Ministry of Social Justice and Empowerment, Government of India, in June 2011. The ministry worked on this draft and came out with its version in 2012. Both the 2011 and 2012 Bills were placed on the ministry’s official website. In the face of this elaborate process of consultation, when cabinet approval was obtained on the current Bill in December 2013, it was presumed that the cabinet had approved the same drafts on which civil society and persons with disability were consulted. This belief was belied. The Rights of Persons with Disabilities Bill 2014 has little or no relationship with the Bill of 2011. People and institutions like NALSAR, which had been closely involved with the 2011 consultative process, feel betrayed  and hugely disappointed. A  government, which had started the legal reform process by creating due space for the right to participation of persons with disabilities, just lost its way.

The outrage of the leakage was soon substituted by the pragmatism of  experienced realities. A number of disability rights groups tried to retrieve the situation by stringing together a group of amendments which they contended would salvage the Bill and enable the enactment of a long delayed legislation. Since the amendments were circulated to members of Parliament on 8 February 2014, it is important to consider whether the inadequacies found in the 2014 Bill are fully addressed by the proposed amendments. A large number of persons with disabilities are unable to obtain their just due not so much because of their impairments but because of the prejudicial attitudes of people. It is these prejudicial attitudes which form barriers to their participation. Disability is social not physical. The medical model is an outdated concept. It is for this reason that raising of awareness was included as one of the critical obligations of state parties in the UNCRPD.  To arouse awareness,  the Bill of 2014 needed to unequivocally state that no person with disability shall be discriminated against on the basis of disability. The Bill does not, unlike the UNCRPD, spell out what constitutes such  a discrimination and furthermore, allows the discrimination of persons with disabilities if required for a legitimate purpose, provided that proportionate means are employed. Thus a piece of legislation, intended to afford protection against discrimination, itself permits discrimination and this permission has not been withdrawn or amended by the amendment.

In the manner of discrimination, the Bill allows the deprivation of liberty of persons with disabilities provided  there are additional reasons for doing so. What is prohibited is discrimination “only on the ground of disability.” A person with disability, who is a vagrant or destitute or considered to be dangerous, could be deprived of liberty because the requirement of equality operates only if liberty is deprived on the basis of disability. The multiplicity of standards again come to the fore when the Bill allows abortions on women with severe disability… without their consent. The wide scope of the power can be seen from the fact that the Bill does not define a woman with severe disability. This is in spite of the Supreme Court’s  decision on accepting the right of a mentally challenged woman to sustain  her pregnancy. While the apex court had acknowledged the importance of exercise of choice by the persons with disabilities in matters concerning their life, the Bill proposes to turn the clock back.

The Bill makes the inviolable and non-derogable rights, such as liberty and equality, negotiable; at another remove,  it fails to adopt principles which are required to obtain the full inclusion of all persons with disabilities. The Bill makes the matter of lifting the legal disqualifications which subsist in existing laws against persons with intellectual, psycho-social and development disabilities a matter of enforcement by the appropriate government. If the government fulfils its enforcement duties then persons with disabilities can enjoy the legal capacity on an equal basis with others. If it fails, then persons with disabilities can continue to be denied the right to enter into contracts, manage  their own properties, marry according to their choice or the right to sue a negligent service provider.

These negotiable formulations are all the more problematic in the light of the fact that the enforcement authorities established by the Bill have been primarily accorded mere “persuasive powers.” The rights guaranteed under the Bill are formulated in disputable terms. Courts are generally inaccessible to persons with disabilities and the authorities who are closer to them can provide little relief in most situations. If the commonly used aphorism in relation to rights is employed in this situation, then it can be said there are no rights as there are no remedies.  Such inadequacies of form and substance, which are only illustrative in nature, led NALSAR University of Law, to disassociate itself from the 2014 Bill. However, when the university examined the case of those who were supporting the Bill, we realised that the collapse of the Bill would hit those with disabilities that are not included in the 1995 Act.    Such persons can obtain the benefit of disability certificate, or pension, or travel concessions only if they are considered persons with disabilities. Since the 2014 Bill included them, they were willing to ignore  the glaring inadequacies of the Bill, consoling themselves with the thought that there is no such thing as “perfect law”.

A realistic acknowledgement of legal imperfection is acceptable; however, to accept a bad law considering it to be good, if not perfect, is undesirable. The new Bill will apply to all  forms of disabilities ~  “old and new”. The  “new disabilities”, so-called, in order to obtain inclusion are inadvertently submitting to a discriminatory regime. The only way out is to include by legislative amendment or promulgation of Ordinance all the disabilities which were going to be included in the 2014 Bill and extend to them all the benefits which are presently extended to disabilities included in the 1995 Act. Such an amendment would create a level playing field between all disabilities and enable all groups to uncompromisingly demand their just due.

We want to have a society which is truly inclusive and egalitarian, where every individual including persons with disabilities have equal opportunities. The vision is to have a society where all categories of disabled persons are valued and respected as equal citizens and partners in the development and progress of  society and they are no longer looked upon either as burdens or liabilities or targets for pity and charity.

The writer is Vice-Chancellor of the NALSAR University of Law, Hyderabad

Source: The Statesman

A hurried disabilities bill will serve no purpose

A hurried disabilities Bill will serve no purpose : Amita Dhanda

TNN | Feb 18, 2014, 01.40 AM IST

The Rights of Persons with Disabilities Bill was introduced in the Rajya Sabha to universal criticism and till now, 16 amendments have been circulated to members of the upper House in an effort to save the Bill. The objective of the legislation was stated as "a Bill to give effect to the United Nations Convention on the Rights of Persons with Disabilities" (UN CRPD). Hence it must be in consonance with the requirements of the Convention to fulfill its primary purpose. The CRPD mandates an absolute prohibition on discrimination on grounds of disability, but this Bill permits discrimination provided it is to achieve any legitimate aim, in clear violation of the CRPD!

The CRPD prohibits deprivation of liberty on grounds of disability. The Bill cleverly inserts one word to change the guarantee altogether: it says that no person shall be deprived of his or her personal liberty only on grounds of disability. This formulation was rejected while drafting the CRPD since it permits the deprivation of liberty when a person with disability is destitute or considered to be 'dangerous'. For thousands, the addition of 'only' could mean being forced to live in institutions for the rest of their lives.

The other core CRPD principle that remains to be examined is the right to exercise legal capacity on an equal basis with others in all aspects of life. Presently scores of laws disqualify persons with disabilities from marrying, inheriting, voting, etc. The CRPD seeks to offset disqualifications imposed upon people with intellectual, psychosocial and developmental disabilities by recognising their right to live their lives according to their will and preference.

However, the 2014 Bill did not even mention the right to legal capacity. In the amendment, legal capacity has been recognised as an obligation of the government, not a right of persons with disabilities. If the government fails to ensure legal capacity, then the person with disabilities can do nothing but bemoan the poor implementation of Indian laws. Consequently, entitlement of reservations in jobs becomes meaningless for persons with disabilities. If it were possible to make things worse, section 110 of the legislation states categorically that the Bill will not override any existing laws, which means all discriminatory laws will continue to be valid!

However, despite the many flaws in the Bill, people with the newly-included disabilities are pressing for its enactment because these disabilities have been waiting for inclusion in the Act since 1999 and feel they cannot wait any more. This grievance is undeniably genuine. The correct way to address this concern would be to amend the Act of 1995, whether by Act or ordinance to include the long-excluded disabilities.

Let us not hurriedly enact a retrograde legislation for all disabilities, which would be impossible to amend for the next 25 years. In order to correct the injustice of exclusion, let us not create an equality of oppression.

(The author is professor and head, Centre for Disability Studies, Hyderabad)

Times of India

An app to tell you which public places are accessible

Want to know which malls, restaurants are disabled-friendly? Soon, an app will tell you

Monday, February 17, 2014 - 06:00 IST | Agency: DNA

Want to know if a restaurant, mall, cinema or a public promenade is friendly for the differently abled? Or whether the lifts in a public building can be used seamlessly by those confined to a wheelchair?

Help may soon be at hand with the state information technology (IT) department planning to develop an app and a linked website which will enable the physically challenged to record their feedback about whether facilities and public spaces are disabled friendly.

Rajesh Aggarwal, principal secretary, IT, told dna that they were working on developing an app to indicate disabled-friendly areas and facilities. "Users will be actually keying in the data," said Aggarwal, adding that this could even cover issues like whether a wheelchair could be accommodated in a cinema hall, mall, multiplex or a walkway.

This facility will also raise awareness about buildings and facilities which are disabled friendly and also compel those which are not suitable for the physically handicapped to re-engineer themselves accordingly to fit the requirements.

The IT department plans to launch the app on Android platforms to be accessed by smart phone users while a corresponding website will be developed for those who do not use smartphones. Aggarwal said they would also request Microsoft to help get the app on the Windows platform.

Welcoming the idea, HK Savla, managing trustee, Jeevan Jyot Cancer Relief and Care Trust, which works for cancer patients and the disabled, said this initiative would raise awareness about the need to make public spaces more disabled friendly. He pointed out that only a few buildings had ramps for the disabled or even toilets to meet their requirements. Savla also recalled an instance where a girl working in a post office was unable to take her wheelchair into the building or even to the toilet.

The department is also developing apps for MahaNews and Lokrajya and has come out with an app to enable users to view the government resolutions (GR) issued by the state government. While MahaNews is the state government's official news and information website, Lokrajya is the state government's official magazine and mouthpiece. The magazine will be available in Marathi, English and Urdu on the app.

Source: DNA India

Best Pratice: Innovating Teaching makes learning a fun for school kids

Village teacher makes learning fun

Vijaysinh Parmar,TNN | Feb 4, 2014, 05.11 AM IST

RAJKOT: Kamlesh Zapadia, a primary school teacher in a remote village of the district, struggles with erratic power supply at his house. But he did not mind travelling 20km to Jasdan daily for a cybercafe to give shape to his innovative teaching aid that makes studying less burdensome. 

Zapadia (35) has converted the entire syllabus from class 1 to 10 in a quiz format - he likens it to Kaun Banega Crorepati (KCB) - so that children don't have to cram textbooks for exams and enjoy studies. 

Zapadia and his friends have developed a website - www.edusafar.com - and uploaded the entire syllabus in the quiz format, a feat that has also been recognized by India's premier business school - Indian Institute of Management - Ahmedabad (IIM-A). 

Zapadia will be among 100 teachers who will be felicitated by Gujarat Innovative Education Council and Gujarat Council of Educational Research and Training, for their innovative ideas in education, in Gandhinagar on February 5. 

"Playing a quiz online is always fun. If the same can be done with syllabus, children will learn faster and enjoy it too," Zapadia told TOI. "Moreover, the entire syllabus in quiz format can be downloaded free of cost from our website. Most schools have computers now and they can utilize it to the maximum," he said. 

Last week, District Institute of Education and Training (DIET) conducted a special workshop on this project. "We are keen to carry Zapadia's idea forward and implementing it in all 1,420 schools. We have already distributed the CDs to all the primary schools in the district," said M V Nagani, principal, DIET.

Source : Times of India 

NCERT Study reveals RTE has failed to meet disabled children's needs

This study shared by NCERT and published by Indian Express reveals serious lapses in the implementation of RTE across the country.

RTE has failed to enable the disabled: Study

Written by Anubhuti Vishnoi | New Delhi | January 27, 2014 1:58 am

Three years after the RTE Act came into effect promising free and compulsory education to children aged six to 14 years and special focus on admission and retention of children with disabilities, an NCERT study has found that disabled children in schools across states still face serious infrastructure and pedagogy handicaps.
Apart from absence of ramps and friendly toilets in schools, the larger problem that almost all disabled children face in the classroom is the absence of special teaching material and sensitive trained teachers.
In Gujarat’s Kheda district, a child with locomotor disability said he never leaves his wheelchair due to non-availability of a friendly toilet in his school.

The NCERT report — ‘Status of Implementation of RTE Act in context of disadvantaged children at elementary stage’ — says that “poor infrastructure, non-availability of appropriate furniture for children with disabilities, non-availability of special aids and appliances, poor quality of aids and appliances for children with locomotor disabilities are major challenges in the fulfilment of RTE to these children”.

The study adds that “educational materials for children with disabilities were non-existent in most sample schools. States/ UTs have very limited vision of arranging different types of educational materials for children with various disabilities”.

The 2012-13 study on children with disabilities had revealed that while 99 per cent of these children liked attending regular schools but 57 per cent of teachers were not trained to understand their special needs.
The study was conducted by the NCERT’s department of elementary education in Andhra Pradesh, Kerala, Jharkhand, Orissa, Gujarat, Uttarakhand and the Union Territories of Puducherry and Andaman & Nicobar islands through questionnaires and interviews with school teachers, parents of disabled children and disabled students.
Respondents in Visakhapatnam and East Godavari districts said there were no Braille books, no assistive devices, no educational materials and no full-time special teachers making it extremely difficult to ensure RTE to children with visual impairments. In Visakhapatnam district, ramps and friendly toilets for children with locomotors disabilities were not appropriate.

Almost all respondents in Almora district of Uttarakhand said their schools did not have facilities and the hilly terrain further complicated their movements. In Orissa, the NCERT study says, there is unhappiness over poor quality of wheelchairs and non-supply of Braille aids despite repeated reminders.

“Wheelchairs and tricycles are supplied to children with locomotors disabilities, though these cannot be used by them due to difficult terrain in Almora district”.

“Special shoes are supplied after one year of assessment, resulting in inappropriate sizes due to growth of feet. Complaint was sent but no satisfactory action was taken,” respondents are quoted in the NCERT study.

In Kerala, children have not been provided teaching-learning materials individually despite the fact that the Sarva Shiksha Abhiyan has a provision for Rs 3,000 per disabled child per year.

The report notes that functionaries and teachers at state-, district- and block-levels were aware of provisions of the RTE Act to a great extent but “orientation of teachers for RTE (except in Orissa) did not include information about disadvantaged and children with disabilities”.

In Jharkhand, respondents pointed out how “there were no special teachers at school level to help children with disabilities; teachers have not been trained to teach children with disabilities; and parents do not bring their children with disabilities to school regularly”.

Sixteen of 25 head teachers/teachers in four districts of Gujarat maintained that it was extremely difficult to teach children with severe mental challenges and multiple disabilities in the classroom.

In Andhra Pradesh, teachers said that “it is difficult to ensure RTE to children with mental disabilities due to behaviour problems and very limited ability to learn. They maintained that these children should be sent to special schools. Respondents in Visakhapatnam and East Godavari districts said there were no Braille books, no assistive devices, no educational materials and no full-time special teachers”.

The report notes that in Kerala “almost all respondents in both the districts said they encountered difficulties in teaching different categories of children with disabilities. They said that behaviour problem of children with mental disabilities (challenges) makes it difficult to manage classroom teaching. These teachers do not have any special training and they find themselves helpless in dealing with children with mental challenges. Two of the teachers said that in a class of 50 children, it is extremely difficult to pay attention to children with a mental challenge and they try to help these children by explaining to them personally”.

A Comedian with Disability committed to disability awareness: Maysoon Zayid

Dear Friends,

I am greatly impressed by the eloquence of this Palestinian woman from New Jersey Ms. Maysoon Zayid - a writer, actor, comedian and co-founder of New York Arab-American Comedy Festival.

She shatters the myths and stereotypes associated with persons with disabilities in no time and you can not but return much more sensitized and knowledgeable about yourself, about your own beliefs about persons with disabilities and their abilities.

I am sure you would love to see this embeded video herein below:

Lack of Political Will disables Persons with Disabilities

Here is a balanced piece from Economic and Political Weekly

Disabled by Lack of Political Will
The government’s failure to table the Disabilities Bill in Parliament is unforgivable.

For the estimated 70 million disabled people in India, the government’s failure to table the Rights of Persons with Disabilities Bill in Parliament in the winter session was another act of cruel neglect and one that their representative organisations are gearing up to tackle. For the four years that it took for the bill to be drafted, disability rights’ advocacy groups and activists kept the pressure up. The approval of the draft bill by the union cabinet on 12 December 2013 raised their hopes only to be dashed. With general elections looming ahead and the uncertainty of how much legislative business will be conducted at the next session, these activists fear that their efforts would simply be washed away. Protests and agitations were held to demand that the bill should be taken up in the February session even as the disabled bitterly pointed out that politicians do not seem to count them as a valued vote bank.

The disabled in India are “invisible”, not to politicians alone; society at large disregards the disabled. Since they do not easily fit into the sociocultural expectations of what “normal” men and women should be like, the disabled are either to be pitied and dealt with charitably or shunned and ignored. To a certain extent, this
attitude was challenged by the Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995 which was considered landmark legislation at the time. However, while this Act did go a small distance in ensuring greater acceptance of the rights of the disabled to employment, not only its implementation but also its scope left much to be desired. It relies too much on the state’s initiative in framing schemes for the disabled while emphasising their vulnerabilities rather than on enhancing their capabilities. It also leans heavily towards the medical approach, emphasising the physical disabilities and tending to view
welfare measures as the solution. It is a familiar experience that most government schemes aimed at a particular section of society suffer from lack of coordination and dovetailing of the efforts of the various agencies at work. Another area that needs attention is the one to do with the socio-economic vulnerabilities of the parents/ guardians/caregivers of the disabled.

A number of crucial areas are also out of the 1995 Act’s ambit, like the problems faced by disabled women, disabled persons’ accessibility to cultural activities and sports, their preschool and higher education, the rights of the mentally ill (here too the women have special vulnerabilities) and many other nuanced rights that are taken for granted by the non-disabled. Disability rights’ groups wanted a comprehensive legislation that would be in keeping with the United Nations Convention on the Rights of Persons with Disabilities which India has ratified and which stresses fundamental rights. Also, this new legislation would have to be hinged on the non-negotiable rights approach rather than doling out concessions. The Ministry of Social Justice and
Empowerment’s proposal to amend the 1995 Act came under fire and thus work began on drafting the new bill.

The 1995 Act however helped to bring the rights and problems of the disabled into public and media discourse and also helped different rights groups to band together on a common platform to a large extent. It must also be noted here that this law suffers from the usual problem of implementation which depends again to a great extent on a sensitive bureaucracy and committed politicians. While looking at the general rights approach however, the gargantuan problems faced by the disabled in finding employment cannot be ignored. Recently, the Supreme Court (SC) ordered a minimum of 3% reservation for them in all central and state government jobs. The significance of the SC’s order lies in the fact that it quashed the central government’s 2005 office memorandum and claim that reservation for the disabled must be restricted to “identifi ed” posts. The apex court ruled that the reservation must be on the basis of the total number of vacancies in a particular cadre rather than posts identified by the government. The SC pointed out that employment is an important
feature of empowerment and inclusion of the disabled and it was lack of employment that forced this section to live in poverty and fail to contribute to family and community.

The Rights of Persons with Disabilities Bill 2012 has won the thumbs up on most counts since it has tried to do away with the shortcomings in the 1995 Act. However, there are a few aspects like that of inclusive education of the disabled and their employment in certain identifi ed posts that have been flagged by some
disability rights advocates as areas that need to be reworked. These and related issues need to be discussed widely once the bill is tabled in Parliament. Will the government ensure that the hopes and aspirations of the disabled are not dashed and the efforts of all those who have worked on the bill do not go in vain?

Source:  Economic and Political Weekly

IRDA proposes life insurance cover for persons with disabilities

Dear Friends,

After the Hon'ble High Court of Delhi's judgement in a related matter on Insurance (Refer my blog entry titled "Extra Premium for Insurance or Reduced Insurance amount- both are discriminatory against the employees with disabilities), wherein the Hon’ble court agreed that charging extra premium from employees with disabilities was indeed a discrimination on the basis of disability and therefore it directed the postal life insurance to provide equal insurance coverage and not charge extra premium from the employees with disabilities, the regulator IRDA is working on a proposal for life to cover the persons with disabilities.

However, what I see from the proposal, certain categories of disabilities, particularly that are not static and likely to change, say for example a person with mental illness (under rehabilitation), or a person with low vision - likely to turn completely blind, will continue to face discrimination.

The problem is the actuaries are not trained in to this aspect of disability and the potential of persons with disabilities. Life can be uncertain for you and me alike irrespective of disabilities, but actuaries tend to presume that a person with disability is more likely to die in comparison to non-disabled is actually a myth.

I had indicated the road ahead in the earlier post after the Court judgement which I am reproducing here:

The Road Ahead

I see this judgment  as a milestone in the disability rights movement with far reaching implications not only in India but also beyond India and especially in European countries where the Actuaries continue to discriminate against persons with disabilities by under-valuing their lives. However, India, its Courts and the persons with disabilities are very progressive on this front and the western countries can follow suit at least on this count.

This is just a beginning. We need a well devised future strategy  to dismantle the entire regime of discrimination that is prevailing in the insurance sector and the immediate challenges are:

(a) The insurance sector still discriminates on the basis of etiology of the disability i.e. from birth and after birth; neurological or physical and rates their lives accordingly which has again no scientific base.

(b) The persons with neurological disabilities are still not allowed any insurance policy and needs to be challenged.

(c) PLI is an insurance scheme for the benefit of government employees hence it will cover a very small section of citizens with disabilities. Those who are outside the government jobs especially those in rural areas are far away from reaping the benefits of insurance.

(d) The Actuaries who are in the business of assessing the life risks are not aware of the real challenges and the lives of the persons with disabilities and they continue to live in their own world and decide on their own whims, the risk calculation of the life of a person with disabilities. They need to be sensitized and made aware.

(e) The entire literature on insurance that I had to read while pursuing this case from outside reinforced the stereotypes about persons with disability and their proneness to accident. Hence, we need new literature for future actuaries to understand that Disability can not be treated always as a negative health profile. And that living with disability was distinct from suffering from a life threatening disease.

(f) There is a need to raise awareness that a person with visual impairment or with hearing impairment or with neurological impairment also enjoys good health like anybody else.

(g) The rules of Insurance sector needs to be changed in light of this judgement and applied across the sector. All insurance  issuing companies - be it private or government have to factor in the principals of this judgement and make amends.

(h) We need to take this awareness to the most marginalized persons with disabilities in rural areas through several means. 

I am sure we all are up for it and would take this to its logical end. Here is  news coverage regarding the IRDA proposal from Business Standard:-

IRDA to bring out proposal for life cover to differently abled

Currently, there are no definitive guidelines defining the cover for people with disability

M Saraswathy  |  Mumbai  January 4, 2014 Last Updated at 00:32 IST

Insurance Regulatory and Development Authority (Irda) is looking to bring out a proposal for providing life insurance cover for the differently abled. While disability is not explicitly excluded from life insurance policies, there are no definitive guidelines defining the cover for such individuals.

“The proposal is at a discussion stage at the actuarial department. We will soon bring out a discussion paper on this,” said a senior IRDA official. This proposal will first be presented as a paper to life insurers for their feedback and then, detailed guidelines would be formulated.

At present, disability insurance is provided under personal accident policies by general insurance companies. Here, the policy provides for income replacement if the policyholder gets physically injured in any accident leading to loss of income for the family.  Disability is also covered by life insurance companies, wherein a cover is provided for accidental disability. These products are offered both, as a policy and as a rider with an insurance plan. If anything happens to the insured during the policy tenure, the insurance company pays him/her a lump-sum amount. However, this does not provide any protection for disabilities existing from one's birth or early childhood.

Insurance sector officials said that there, the regulator would clearly define what is disability, the types of disability-permanent or ongoing. The various ailments are also expected to be classified either as static and permanent, which would include polio and physical disability like loss of sight at birth, loss of hand/leg at birth among others. Other types of ongoing ailments like severe Hepatitis B, cancer of the last stages and severe damage to the lungs or heart would be put into a separate category.

“While permanent and static disability is expected to be included as the category that would be covered by life insurance, progressive and critical stages of ailments are likely to be excluded from coverage. This is because such ailments are very risky to be covered, from an insurance perspective,” said a senior life insurance official.

Officials close to this development said that at a future stage, when there is adequate data and research on these ailments, such patients could be provided life insurance cover, albeit at a higher premium.

Not all types of cancer are excluded from life insurance coverage. While patients in the last stages of such life-threatening diseases are excluded from life insurance coverage, others at an early stage are not denied a cover. These patients usually pay 30-40 per cent higher premium than regular policyholders, due to the higher risk involved in their coverage.  

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